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Advisory Council on Hereditary and Congenital Disorders

Policies pertaining to the detection and management of hereditary disorders are set by the Advisory Council on Hereditary and Congenital Disorders. This body was previously called the Commission on Hereditary Disorders. The Council has legislative, medical, and consumer members. The consumers are in the majority. The Council considers the incidence of each disease, the effectiveness of treatment, the cost of treatment, public sentiment, the opinions of affected individuals and the opinions of psychological, ethical, social and economic "experts" in drafting regulations for genetics programs, such as the newborn screening program. The statute establishing the Council requires all genetics programs to be voluntary, to make test results available to the patients and their health care providers, to respect confidentiality, to provide non-directive genetic counseling and to utilize accurate testing procedures and licensed laboratories. The pertinent regulations for newborn screening are COMAR 10. 52. 12.

Upcoming Meeting

Advisory Council on Hereditary and Congenital Disorders

  • TBD
    6:00 – 8:00 p.m.
    201 W. Preston Street, Conference Room L-1
    Baltimore, Maryland 21201
  • Email inquires to: Georgia Corso

 

Maryland State Advisory Council on Hereditary and Congenital Disorders Brochure

Critical Congenital Cyanotic Heart disease (May 23, 2011)

 

 baby in a blanket